The wee hours of October 8 marked the beginning of Anna’s eight hour surgery to replace her first set of gently used lungs with the precious lungs of another family’s lost loved one. For Anna, it was exciting and terrifying all mixed together. She is still in the ICU healing and getting better in different ways every day. It’s a bit of a roller coaster trying to balance the medications they are giving her for pain, keeping fluid off the lungs while also keeping her blood pressure stable. The bottom line is, she’s doing well. Anna told me last night that this transplant is way better than the last one. 🙂
My mental health tidbit for this post is, it’s so important to let our feelings have a healthy outlet. This is an emotionally and physically exhausting adventure for all concerned. The most challenging job is Anna’s. While on the ventilator she had to calm herself down so she wouldn’t be constantly fighting the breathing tube. She has hallucinations. She knows it. So she talks herself down from whatever the hallucinations might be telling her or simply reminds herself, “Yeah, this isn’t real. Random people are not hanging out in the corner of my room singing to me.” 😊
A few nights ago I noticed myself getting really snippy with my husband and he totally did not deserve it! The next morning I took time for myself doing yoga, spending sweet time with God, and soaking in a bit of peace and sun outside. I felt the rise of tears but they disappeared. I started texting a friend and the tears started to roll down my cheeks. Yay! I needed this. I cried and cried. My friend called me and I cried with her for a bit. It felt so good just to let all the built up emotions out. I had spent the last six days being strong, holding it together, staying positive. That’s an important part of this process: the ability to contain when necessary but also the ability to let the emotions out in a safe space. I felt teary most of the morning. It was hard to shut down the faucet but eventually it ran dry. By the afternoon I was feeling grounded and clear again. I don’t feel so exhausted either. A good cry goes a long way!
So sorry for a long delay between posts. I ran into a bit of a technical issue with my blog that is now remedied. Since last writing, we have learned that Anna’s lung functions stabilized. She has about 1/2 her lung capacity. It has remained this way for about the last two months. Our hope is she stays at this level for the long haul. Anna has adjusted to the reduced lung capacity physically and doesn’t notice most of the time. We’ll know more about the progression of the chronic rejection this summer after Anna’s next Dr’s visit at Duke.
NEWS: I have a new website that will be up and running hopefully soon. I’m combining my Journey Forward website with my new, Journey Forward for Life domain. I am planning on offering videos and online workshops to supplement the Journey Forward Workbook. I also have an idea to create in-person retreats that will give a limited number of people the chance to go to a beautiful place where they can work on issues in a group format lead by me.
The first retreat will be on Self Care. You’ll have the opportunity to explore who you are, what you like and don’t like and how you can restore and recharge. We’ll dig into the whys behind the challenges you face in taking care of yourself or even knowing what you like. I’m excited about the changes to come. If you want to stay in the loop, please email me and I’ll get you on my email list. No constant filling of your inbox, just letting you know when I’m launching new offerings. Email me as well if you are interested in participating in my first retreat this summer: email@example.com
Here’s to humming along!
The writing process is long. I keep reminding myself that although I want a finished product, I must be present in this moment of the journey. My workbook is currently in the hands of the United States Copyright Office. This afternoon I will be sending the manuscript to the printer. Here’s a sneak peak at two random pages from the chapter on Self Care:
Our lives are filled with so much out of our control like illnesses, political decisions, weather, other people’s choices… So what’s a person seeking to live a healthy life supposed to do? Look at each situation in your life and pull it apart, investigate it. What’s really going on? Who are the players? What is their role? Is this something you have absolutely no control over in the happening part of it? Where do you have control?
We always have some control. At the very least, we can control what we are going to do in any situation. If a person has a gun to my head, I can still make choices around my words, my thoughts and my actions. I might end up shot anyway because I don’t have control over the other person. I can dress appropriately for the weather, but I can’t control what the weather does. I can take care of my body to the best of my ability, but I can’t make it be healthy. I can write a letter or call my Representatives in the US government, but I can’t force them to vote how I want.
When we look at and act on the areas where we do have control we get a sense of empowerment, which usually spurs us on to take more action within our control. Remember when exercising control to keep it in the realm of healthy, legal and wise. Very rarely you might find yourself dealing with an oppressive government or situation which might call you to do something illegal. I’m thinking of the underground railroad during the time of slavery. It was illegal to provide shelter and escape for the slaves, but people did it anyway because the law was wrong. Breaking the law was about preserving human decency, not taking it away.
Most of us aren’t, and hopefully will never be, in that type of situation. For now, find the areas in your life where you think you have no control and give it another go. Process through it and find strength in your God-given right to decide how you want to deal with it. 🙂