I just lowered the price of the workbook from $19.99 to $9.99. It will be available at this price in 3-5 days on Amazon. I will keep it at this price until January 29, 2018. I also created a Kindle version. The Workbook isn’t ideal for Kindle, but it does make it easier to take the Workbook with you when you are on the go. If you buy (or bought) the print Workbook, you can purchase the Kindle version for $2.99. It’s called “Matchbook Price”.
The Journey Forward for Life website will be up and running by the end of February. I plan to offer a variety of workshops to compliment the Workbook and help you on your Journey Forward 😉
Anna has returned home from Duke Hospital! She is laying low and doing her best to avoid all the nasty germs since her immune system is not strong. She is getting back to just living a normal life. She will return to her new apartment in Phoenix next week. She is in a friend’s wedding next weekend and then she will start her internship at Southwest Behavioral Health.
I asked her how she is doing with her diagnosis of chronic rejection. She said she is choosing not to think about it. There is nothing she can do to change it. Moping around about it sucks life out of her and makes the present very gloomy. She is living in the moment of what is rather than what could be. She spent some time crying about it and then wiped her tears and said, “OK.”
I’m sure those tears will crop back up now and then. She’ll feel them and then continue to move forward. That’s the healthiest way to deal with the harsh realities of life. She sets a fabulous model for all of us as we face our own challenges, disappointments, and pain. Feel them if they are real, let the tears fall, and then wipe our eyes and move on. Live in the now, not the ‘what could be’.
2018 is starting out well! Anna has tolerated the rATG very well. The worst side effect so far has been a headache. That’s it! Yay!!! Thank you all for your continued support! It will take time before we know if the chronic rejection stops stealing her lung capacity. I’m assuming she will be followed fairly closely to keep an eye on it. I’ll keep you posted. For now, I think we can all breathe a sigh of relief. She still has a few days of being in the hospital while continuing the rATG treatment. I have returned home due to a work obligation. She is in good hands though! Besides our wonderful friends and family in North Carolina, her boyfriend, Michael is keeping a close eye on her 🙂
We have some answers about Anna. She has both acute and chronic rejection. Acute rejection is usually treatable. Anna has had this before. A few days of intense IV steroids have stopped it every time. Chronic rejection sometimes stops but the damage is irreversible. It causes scar tissue in the lungs. Lungs and scar-tissue don’t go very well together because scar tissue doesn’t expand like healthy lung tissue. As a result of the scarring, Anna’s lung functions have dropped to 62%.
Today, she started an IV treatment called rATG. It’s supposed to stop the acute rejection. I’m a bit confused about how or if this will help the chronic rejection. The rATG has some bad side-effects. Some people tolerate it just fine. Some end up with intense flu-like symptoms. Some have blood pressure issues and end up in the ICU. Some get PTLD. If you have followed Anna, you might recognize those four letters as the type of cancer she got. Side effects or complications are not one size fits all. Anna might be totally fine. At the moment she is in a Benadryl induced nap.
So here we are again staying in the here and now. I’m mad about the lost lung functions. I’m mad about the chronic rejection. I’m also sad about both. I stop there. I have to. I feel this heaviness in the center of my chest. It’s a ball of tears that just want to come pouring out. They will. I will let them, just not now. Right now Anna is staying upbeat and positive. She joked about how the last time she had Benadryl, she thought her hospital room was the portal to heaven and she called her brother and cousin to tell them they needed to get to her room or they would be left behind. So far, she’s not having that kind of fun!
I hear Dory sweetly reminding me, “Just keep swimming, just keep swimming…” So that’s what we will do. Breathe and make the best of now. It’s New Year’s Eve. We must celebrate!